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  1. How NORD Can Help - Resources, Financial Support, & More

    Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is …

  2. NORD Rare Disease Videos | Informational Videos About Rare …

    The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and …

  3. Rare Disease Research Grant Program | NORD

    Explore NORD's research funding opportunities and submit innovative proposals advancing rare disease understanding, treatment, and potential breakthrough discoveries.

  4. Contact Us - National Organization for Rare Disorders

    Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …

  5. Sotos Syndrome - Symptoms, Causes, Treatment | NORD

    May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and

  6. Patient Assistance Programs - National Organization for Rare …

    Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …

  7. What You Should Know About Undiagnosed Rare Diseases | NORD

    NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …

  8. Rare Disease News - National Organization for Rare Disorders

    6 days ago · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

  9. Patient Organizations - National Organization for Rare Disorders

    Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.

  10. For Clinicians & Researchers - National Organization for Rare …

    Access comprehensive resources, research tools, and professional insights for clinicians and researchers specializing in rare disease diagnosis and treatment.